Patient Registries and Observational Studies
We capture data on diagnoses, treatments and outcomes across large and diverse patient populations to reflect the realities of everyday practice.
The European Unified Registries for Heart Care Evaluation and Randomised Trials
EuroHeart
EuroHeart provides a structured, continuous system for collecting standardised data on cardiovascular care and outcomes across countries and healthcare settings. As a Europe-wide initiative, EuroHeart collaborates with national cardiac societies and clinical experts to build harmonised national registries, offering tools and frameworks that help countries monitor outcomes, compare practices and drive sustainable improvements in care.
Global Registries And Surveys Programme
GRASP
GRASP delivers focused, time-bound survey and observational studies.
Complementing EuroHeart, GRASP engages countries from diverse healthcare systems to ensure that no patient population is left unseen. We seek voluntary participation from all 58 ESC National Cardiac Society member countries and welcome contributions from the 49 ESC Affiliated Cardiac Society countries, giving our registries the broadest geographical scope in the cardiovacualar healthcare domain.
GRASP covers common diseases, rare diseases and prevention, strengthening cardiovascular care by:
- Evaluating the implementation of ESC Clinical Practice Guidelines to close gaps between recommended standards and real-world practice.
- Assessing the epidemiology and management of rare and complex cardiovascular conditions, ensuring these patients receive optimal care.
- Promoting structured approaches to prevent cardiovascular disease.
Building on the legacy of the EURObservational Research Programme (EORP), which concluded in 2024, GRASP continues more than a decade of international collaboration and discovery.
Active GRASP studies
EuroAspire VI
This sixth edition of EUROASPIRE will focus on hospital patients with coronary heart disease, with and without diabetes mellitus, and apparently healthy individuals in primary care at high risk (hypertension, dyslipidaemia, diabetes) of developing cardiovascular disease (CVD).
GRASP-HF: A heart failure snapshot study
GRASP-HF is a repetitive snapshot with a yearly short enrolment period, to capture the relevant clinical information of patients with HF, including their acute episodes of decompensation. This study improves the knowledge on epidemiology and outcomes of real-world HF patients
Chronic Coronary Syndrome Snapshot Study
The GRASP-CCS snapshot study is a prospective, international, multicentre, longitudinal study with a short period of enrolment and a three-month follow-up.
Spontaneous Coronary Arterious Dissection (SCAD) Registry
The SCAD registry collects multinational data on spontaneous coronary artery dissection—a rare, often devastating cause of myocardial infarction in young, healthy patients, predominantly women. By tracking presentation, management, and outcomes, this initiative aims to close knowledge gaps and improve care.
Acute Coronary Syndrome with persistent ST segment elevation
This common diseases snapshot study is in the pipeline. Details coming soon!
Valvular Heart Disease - MR and TR
This common diseases snapshot study is in the pipeline. More details coming soon!
Cardiomyopathies
This rare disease registry is in the pipeline. More details coming soon!
Meet our team
These initiatives are made possible by a remarkable community of volunteers who dedicate their time and knowledge to advancing patient data collection and governance. The Patients Data Research Group, part of the ESC Data Science Committee, provides expert oversight and guidance across all registry programmes, helping turn data into meaningful insights and ultimately better heart health for patients everywhere.
Want to be part of it?
Valued partners’ contributions have allowed our patient registries and studies to develop into a vast area of research in the field of cardiology. While the cardiologists who contribute their time and energy to the enrolment of patients and completion of CRFs do this on a voluntary basis, our partners’ investment allow the ESC to continue to support the infrastructure required to develop this scientifically invaluable activity.
Supporting our registries provides access to the widest cardiovascular network worldwide, and demonstrates a commitment to improve cardiovascular care by allowing the monitoring of clinical practice guidelines implementation. Such monitoring in turn may facilitate the update of ESC guideline recommendations and provides the foundation for the creation of educational resources to further promote guideline implementation.
For any questions regarding sponsorship of ESC patient registries and studies, please contact us.