What are these patient & general population surveys?
They are online questionnaires aimed at patients and/or the general population.
Links to the questionnaire are given to patients (ambulatory or hospitalised) by nurses or doctors so that they can complete the surveys on their own, anonymously.
General population surveys are disseminated mainly via press and social media campaigns.
Patient & general population surveys
PULSE survey: Population Survey on Knowledge, Gaps and Perception of Heart Rhythm disorders
Despite increasing prevalence, the general population lacks knowledge regarding diagnosis, implications, and management of cardiac arrhythmias (CA). This study aims to assess public perception of CA and identify knowledge gaps.
Read the manuscript
Previous patient surveys
Patient Experience in the Electrophysiology Laboratory
The Scientific Initiatives Committee (SIC) and Patient Coordination of the European Heart Rhythm Association (EHRA), along with the European Society of Cardiology (ESC) Patient Forum, will conduct a patient survey entitled 'Patient Experience in the Electrophysiology Laboratory'. The primary aims of this survey are to evaluate patients’ experience undergoing device implantation, an electrophysiology study or an ablation procedure and to improve the quality of care. This questionnaire is expected to determine the current standard of care in the electrophysiology laboratory.
The protocol and survey have been translated into the following languages:
Patient survey: Living with an ICD
The European Heart Rhythm Association (EHRA) Scientific Initiatives Committee (SIC) conducted a patient survey entitled 'Living with an ICD'. The main aim of this survey was to assess the knowledge and quality of life in ICD recipients.
Documents to download