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ESC Patient Forum: What we do

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ESC Patient Forum involvement in ESC activities


The ESC’s ambition is to benefit from patients’ perspectives in Clinical Practice Guidelines development with the aim of improving the relevance, quality and validity of the Guidelines. Therefore, one or two ESC Patient Forum members sit on every Guidelines Task Force, and patients are also involved in the review process. To further enhance patient involvement in the development of the Guidelines, an ESC Patient Forum member participates in the Clinical Guidelines Committee (CPG).

Listen to ESC Patient Forum members Axel Verstrael and Richard Stephens sharing their experiences in Guidelines development:


Axel Verstrael

Richard Stephens

Since 2021, the ESC publishes patient versions of the ESC Guidelines that summarize in lay language the most important recommendations from the Guidelines. 


Patient Forum members are involved in several Association Committees such as the HFA Heart Failure Matters Committee, the EHRA Patient Committee, the ACNAP Science and Advocacy Committees, and the EAPCI Patient Initiatives Committee.  They also function as co-authors in scientific documents initiated by ESC Associations, for example:


ESC Patient Forum members are active on a number of ESC Committees such as the Clinical Practice Guidelines Committee, the Digital Health Committee, the Advocacy Committee, the Ethics & Oversight Committee, the DOI Committee and the Communication Committee. 


ESC Patient Forum members regularly participate in the ESC Congress and several subspeciality congresses as speakers and discussants in scientific sessions. Here are some presentations they have given:

Cardiovascular Round Table (CRT)

The Cardiovascular Round Table is a strategic forum for high-level dialogue between industry (pharmaceuticals, devices and equipment) and ESC leadership to identify and discuss key strategic issues for the future of cardiovascular health in Europe. ESC Patient Forum members regularly participate in these exchanges and share their perspectives on topics such as innovation in medical devices, unmet medical needs, diversity in clinical trials, or cardiometabolic risk reduction. 

ESC Patient Forum workstreams

The Forum has established three internal workstreams focusing on topics which members have identified as common priorities:
  • CVD in women
  • Emotional well-being
  • Digital health
Publications from the workstreams: