HeartQoL

Health-related quality of life questionnaire in more than 30 languages

Outcome assessment is essential to providing quality health care.

Patient-reported outcomes are an integral component of outcome assessment.

Health-related quality of life, symptoms, and functional status make up patient-reported outcomes.

Through its prevention implementation programme, the European Association of Preventive Cardiology (EAPC) developed HeartQoL, a health-related quality of life questionnaire, which is available in more than 30 languages.

Languages

The HeartQoL questionnaire is available in the following languages:

Azerbaijani, Bahasa Malaysia, Bulgarian, Chinese (Mandarin), Croatian, Czech, Danish, Dutch, English, Finnish, Flemish, French, German, Greek, Hmong, Hungarian, Icelandic, Italian, Korean, Latvian, Lithuanian, Norwegian, Persian, Polish, Portuguese, Romanian, Russian, Serbian, Slovakian, Spanish, Swedish, Turkish, Ukrainian

Note: If you need the HeartQoL questionnaire in a language not listed above, please indicate this in your application form and the professional translation will be provided together with the HeartQoL pack (The translation will be initiated upon receipt of payment of the license by the requestor).

HeartQoL licenses

The use of HeartQoL is subject to a license. Please see below the set categories and applicable fees. Prices are shown excluding VAT.

Licenses are valid for a single project
No additional fees will be charged when requesting multiple languages
No additional fees per additional site/location
EAPC Accredited Centres get free access for audit / quality control purposes

Category	Description	1-100 Patients	101-250 Patients	251-500 Patients	+500 Patients
National audits (valid for 3 years)	Audit conducted at country level to assess the quality of healthcare, by or in partnership with a National Health organisation, or National Cardiac Society	€200	€500	€1,000	€2,000
Standard licenses (valid for a single project)	Applicable to clinical studies / research projects	€500	€1,250	€2,500	€5,000
Industry sponsored project / Commercial license (valid for a single project)	Applicable to for-profit companies and industry-sponsored research	€1,000	€2,500	€5,000	€10,000

Request a license

When the request form is approved, you will receive payment instructions and the requested questionnaire(s) will be sent to you by email when the payment is received.

Kindly note, requests are usually processed within 10 working days after payment.

HeartQoL Validation studies proposal

HeartQoL is validated in several languages and coronary heart disease pathologies. See the list of published validation studies for reference.

HeartQoL is validated in 17 Languages (as of August 2023): Danish, Dutch, English, Flemish, French, German, Hungarian, Icelandic, Italian, Norwegian, Persian, Polish, Portuguese, Russian, Spanish, Swedish, and Ukrainian.

It is possible to propose new validation studies for:

A language not yet validated
A coronary heart disease pathology not yet validated
A language and coronary heart disease pathology not yet validated

New proposals for validation studies should include a description of the proposed methodology. As guidance, the EAPC validation studies synopsis is based on the 2002 Medical Outcomes Trust publication [Scientific Advisory Committee of Medical Outcomes Trust. Assessing health status and quality-of-life instruments: attributes and review criteria. Qual Life Res. 2002;11:193-205].

Propose a validation study

Validation studies proposals are reviewed on a monthly basis. The questionnaire will be provided free of charge for approved validation studies.

Published HeartQoL validation studies

Oldridge N, Höfer S, McGee H, Conroy R, Doyle F, Saner H, et al. The HeartQoL: Part I. Development of a new core health-related quality of life questionnaire for patients with ischemic heart disease. Eur J Prev Cardiol. 2014;21(1):90-7. (International study, 15 languages)

Oldridge N, Höfer S, McGee H, Conroy R, Doyle F, Saner H, et al. The HeartQoL: Part II. Validation of a new core health-related quality of life questionnaire for patients with ischemic heart disease. Eur J Prev Cardiol. 2014;21(1):98-106. (International study, 15 languages)

De Smedt D, Clays E, Hofer S, Oldridge N, Kotseva K, Maggioni AP, et al. Validity and reliability of the HeartQoL questionnaire in a large sample of stable coronary patients: The EUROASPIRE IV Study of the European Society of Cardiology. Eur J Prev Cardiol. 2016;23(7):714-21. EUROASPIRE (International study)

Kristensen MS, Zwisler AD, Berg SK, Zangger G, Gronset CN, Risom SS, et al. Validating the HeartQoL questionnaire in patients with atrial fibrillation. Eur J Prev Cardiol. 2016;23(14):1496-503. (Danish)

Lee WL, Chinna K, Bulgiba A, Abdullah KL, Abidin IZ, Hofer S. Test-retest reliability of HeartQoL and its comparability to the MacNew heart disease health-related quality of life questionnaire. Qual Life Res. 2016;25(2):351-7. (English)

Oldridge N, Cho C, Thomas R, Low M, Hofer S. Validation of the English Version of the HeartQoL Health-Related Quality of Life Questionnaire in Patients With Coronary Heart Disease. J Cardiopulm Rehabil Prev. 2018;38:92-9. (English)

Gronset CN, Thygesen LC, Berg SK, Zangger G, Kristensen MS, Sibilitz KL, et al. Measuring HRQoL following heart valve surgery: the HeartQoL questionnaire is a valid and reliable core heart disease instrument. Qual Life Res. 2019;28(5):1245-53. (Danish)

Ranjandish F, Mahmoodi H, Shaghaghi A. Psychometric responsiveness of the health-related quality of life questionnaire (HeartQoL-P) in the Iranian post-myocardial infarction patients. Health Qual Life Outcomes. 2019;17(1):10. (Persian)

Zangger G, Zwisler AD, Kikkenborg Berg S, Kristensen MS, Gronset CN, Uddin J, et al. Psychometric properties of HeartQoL, a core heart disease-specific health-related quality of life questionnaire, in Danish implantable cardioverter defibrillator recipients . Eur J Prev Cardiol. 2018;25(2):142-9. (Danish)

Huber A, Oldridge N, Benzer W, Saner H, Höfer S. Validation of the German HeartQoL: A short health-related quality of life questionnaire for cardiac patients. Quality of Life Research, volume 29, pages 1093–1105 (2020)

Fattirolli F, Argirò A, Angelino ME, Balestroni G, Giallauria F, Miani D, et al. Validation of the Italian HeartQoL: a short health related quality of life questionnaire for patients with ischemic heart disease. Internal and Emergency Medicine (2021)

Margrét Hrönn Svavarsdóttir, Brynja Ingadottir, Neil Oldridge, Kristofer Årestedt Translation and evaluation of the HeartQoL in patients with coronary heart disease in Iceland. Health Qual Life Outcomes. (2023) doi.org/10.1186/s12955-023-02161-7

Testimonials from investigators

From Belgium

"At the University of Hasselt, we use the HeartQoL for research concerning tele-rehabilitation. The questionnaire is quite sensitive to changes in quality of life, and very well adapted to the diverse cardiac population studied."- Prof. Paul Dendale and Dr. Ines Frederix

From Denmark

"Our group has collected data to validate the questionnaire in a broader group of people suffering from cardiac disease. The first paper has been published on atrial fibrillation. We have further demonstrated that the questionnaire can be used in ICD as well as following valvular surgery. These results are yet to be published. Finally, we have the data to look into the group of patients with infectious endocarditis."- Prof. Ann-Dorthe Zwisler