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EHRA Patient Surveys

What is a patient survey?

It is a questionnaire available online dedicated to patients.

The link to the questionnaire is handed out to the patients (ambulatory or hospitalised) by nurses or doctors to be completed anonymously.

Patient survey

NEW! Patient survey: "Living with an ICD"

The European Heart Rhythm Association (EHRA) Scientific Initiatives Committee (SIC) conducts a patient survey entitled “Living with an ICD”. The main aim of this survey is to assess the knowledge and quality of life in the ICD recipients. We are going to explore patients’ attitude towards life with an ICD and end-of-life issues. This survey is expected to establish the current needs of ICD patients in terms of information about the device. Study results should help physicians in providing specific counselling in the ICD population.

Summary protocol to download in your language

Patient survey: "Living with Atrial Fibrillation"

The European Heart Rhythm Association (EHRA) Scientific Initiatives Committee (SIC) will conduct a patient survey entitled “Living with atrial fibrillation”. The main objectives of the survey will be to assess knowledge the patients with atrial fibrillation (AF) have about their arrhythmia, the sources which were useful for them to learn about AF, and their preferences regarding these sources. The survey will also evaluate aware involvement of AF patients in the process of diagnostic and therapeutic decision-making, and the burden the disease itself and the treatment poses to them. By recognizing patients attitudes, and expectations regarding information about their arrhythmia, but also their knowledge about AF, and their involvement in diagnosis / treatment of arrhythmia, this survey is expected to identify the gaps existing between contemporary patient involvement, education, and self-management in European countries and current recommendation of cardiac societies. Knowledge on the burden that AF and its management poses to patients, will identify areas, where integrated patient care requires further patient-tailored optimization. Consequently, the results obtained will allow to identify main areas of uncertainties and suggest the directions of further research.

Summary protocol to download in your language

Previous Patient Surveys

CIED Patient Survey

The SIC undertook a patient survey in November 2016, over a period of 2 months in the following countries : Denmark, France, Italy, Norway, Poland, Romania, Spain and Sweden.

This patient survey was carried out among patients with implantable electronic devices. The main purpose of this survey was to describe in detail the knowledge, values and preferences of patients with an implantable device across Europe. By identifying the education, compliance, experience and concerns of patients in daily clinical practice in Europe, this survey was expected to highlight the gaps between current recommendations and clinical practice and the areas of uncertainties.

Documents to download:

Education & Compliance of Patients taking Anticoagulants

The first Patient Survey about Education & Compliance of Patients taking Anticoagulants was dedicated to Patients who have or have had Atrial Fibrillation. It was conducted for 3 months in 8 different countries and languages.

Take a look at the 2 manuscripts that were published in the EP Europace Journal following the survey.