EHRA Patient Surveys

What are these patient surveys? 

They are online questionnaires aimed at patients.

Links to the questionnaire are given to patients (ambulatory or hospitalised) by nurses or doctors so that they can complete the surveys on their own, anonymously.

Patient surveys

Patient Experience in the Electrophysiology Laboratory - an EHRA Questionnaire

The Scientific Initiatives Committee (SIC) and Patient Coordination of the European Heart Rhythm Association (EHRA), along with the European Society of Cardiology (ESC) Patient Forum, will conduct a patient survey entitled 'Patient Experience in the Electrophysiology Laboratory'. The primary aims of this survey are to evaluate patients’ experience undergoing device implantation, an electrophysiology study or an ablation procedure and to improve the quality of care. This questionnaire is expected to determine the current standard of care in the electrophysiology laboratory

The protocol and survey have been translated into the following languages:

• Dutch
• English
• German
• Greek
• Italian
• Polish
• Portuguese
• Spanish

Patient survey: Living with an ICD

The European Heart Rhythm Association (EHRA) Scientific Initiatives Committee (SIC) conducted a patient survey entitled 'Living with an ICD'. The main aim of this survey was to assess the knowledge and quality of life in ICD recipients. 

Documents to download

• Summary of the protocol
• The manuscript
• 2nd manuscript
• 3rd manuscript

Previous patient surveys

Patient survey: Living with atrial fibrillation

The European Heart Rhythm Association (EHRA) Scientific Initiatives Committee (SIC) conducted a patient survey entitled 'Living with atrial fibrillation'. The main objectives of the survey were to assess knowledge the patients with atrial fibrillation (AF) have about their arrhythmia, the sources which were useful for them to learn about AF, and their preferences regarding these sources. 

Documents to download:

• Protocol
• The manuscript

CIED patient survey

The SIC undertook a patient survey in November 2016, over a period of 2 months in the following countries : Denmark, France, Italy, Norway, Poland, Romania, Spain and Sweden.

This patient survey was carried out among patients with implantable electronic devices. The main purpose of this survey was to describe in detail the knowledge, values and preferences of patients with an implantable device across Europe. By identifying the education, compliance, experience and concerns of patients in daily clinical practice in Europe, this survey was expected to highlight the gaps between current recommendations and clinical practice and the areas of uncertainties.

Documents to download:

• Summary of the protocol
• The manuscript

Education and compliance of patients taking anticoagulants

The first patient survey about education and compliance of patients taking anticoagulants was dedicated to patients who have or have had atrial fibrillation. It was conducted for three months in eight different countries and languages.

Two manuscripts were published in EP Europace following the survey:

• Differences in attitude, education, and knowledge about oral anticoagulation therapy among patients with atrial fibrillation in Europe (February 2016)
• Patients’ attitude and knowledge about oral anticoagulation therapy: results of a self-assessment survey in patients with atrial fibrillation (October 2015)