EAPCI Patient Engagement

Patient Advocacy Committee 2024–2026

Background

Improving the patient experience and their understanding of laboratory-based catheterisation procedures is a key aim of the EAPCI. The EAPCI Patient Initiatives Committee has been set up with this in mind. The current EAPCI Patient Initiatives Committee is serving from May 2024 to May 2026.

The term for 2024-2026 aims to achieve several goals targeting the following 3 areas:

Take into account patient’s experience, perception and feedback
Specific action in women: participation in trials and rehabilitation programme after treatment
Specific action in patient with structural cardiac diseases, especially aortic stenosis: differences in symptom perception in men and women

Achievements

During the previous terms, the committee worked on a number of collaborative projects, together with the ESC Patient Group, focusing on improving the patient experience and their understanding when undergoing percutaneous interventions.

A Patient Reported Experience Measurements (PREM) questionnaire was drafted and is now available in ten different languages as the “European Patient Experience in the Catheterisation Laboratory” PATCATH. The aim of this questionnaire is to understand and improve patients' experience while undergoing catheterisation laboratory-based procedures.
Additionally, in keeping with the aim of improving patient understanding and engagement, five patient information videos were produced and are now available for viewing, explaining:
- How a diagnostic coronary angiogram is performed
- How a percutaneous coronary intervention is performed
- How a transcatheter aortic valve replacement (TAVR) is performed
- How a transcatheter edge-to-edge repair of the mitral valve is performed
- How a left atrial appendage occlusion (LAAO) is performed

Access the resources

Past projects

A European survey on consenting practices for interventional procedures with the aim to discern differences across different countries and regions.
Access the preliminary results
Development and validation of a Patient Reported Outcome Measure (PROM) for angina.

Committee members

Chair : Dr. Stephane Manzo-Silberman, France
Co-Chair: Dr. Joanna J. Wykrzykowska, The Netherlands
Dr. Andrew Chapman, United Kingdom of Great Britain and Northern Ireland
Ass. Prof. Domenico D'Amario, Italy
Dr. Emanuele Gallinoro, Italy
Dr. Ragy Hany Ibrahim, Egypt
Mrs. Lynne Hinterbuchner, Austria
Mr. Paul Mc Greavy, United Kingdom of Great Britain and Northern Ireland
Ass. Prof Sonja Salinger, Serbia
Dr. Sylwia Slawek-Szmyt, Poland
Dr. David Sulman, France
Prof. Marta Tavares-Silva, Portugal
Mr. Ciro Salvatore Vella, Italy
Ass. Prof. Biljana Zafirovska Taleska, North Macedonia