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Pregnancy and Heart Disease Registry

What is the Pregnancy and Heart Disease registry?

This survey is designed to assess the management and outcome of pregnancy in patients with structural heart disease (mainly congenital heart disease, valvular heart disease and cardiomyopathy). There is a lack of data in this area and a very large registry will provide information about current practice, the complications that occur and possibly the reasons why these complications occur.
We hope it will produce information that will improve the survival of women with heart disease having babies and will help the survival of their babies.

The survey has been developed and the case record form designed by a collaboration of the Congenital Heart Disease and Valve Disease working Groups.
This is an international survey and therefore anybody in the world who deals with this type of patient can enrol their centre as a participating centre. The centre does not have to be in Europe. The patients will be included prospectively but in addition to this any mothers giving birth after 01 December 2006 can have their data entered retrospectively.
Data will be analysed overall and also by country and by world region

More infomation

Read more about background and objectives

To participate, please follow instructions available here