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This registry is now enrolling. You are invited to join!
Join the Registry
Our current knowledge of the risks of pregnancy and delivery in patients with heart disease is limited. To be able to practice to the standard demanded by an “Evidence-Based Medicine” approach, it is imperative that we establish a large prospective registry. The information provided by the registry will enable us to give accurate evidence-based advice to optimise the care that this group of women receive during pregnancy.
The EORP ROPAC registry is a study of pregnancy in women with structural heart disease, that started in 2007.
A detailed overview of the data from 5 739 pregnant women enrolled during ROPAC II have been analysed and will be published in the European Heart Journal soon.
To find out more about the registry, you can watch this short video of the interview of Jolien Roos-Hesselink recorded during the 2018 ESC congress here.
Jolien and Roger Hall created the registry together and have been co-chairs since the beginning.
ROPAC III is now focused only on pregnant patients with 2 types of cardiac condition:
This study is purely observational. That means that you will be asked to treat your patient(s) as you usually do. There is no study requirement regarding handling of patients. This is data collection only.
All cardiologists worldwide - who look after pregnant patient(s) with prosthetic valve or who have been diagnosed or are at risk of aortic pathologies - are very welcome to join!
Join us and participate in the continuous improvement of science and medicine!
The main objectives of the registry are to:
The registry will result in the publication of one main paper (answering the objectives above) and several sub-papers for which you can propose your idea(s) if you took part in the registry!
You will have to obtain the appropriate approval(s)/authorisation(s) to conduct the study in your country.
Once this is obtained, you may propose to enrol in the registry all consecutive patients who meet the inclusion criteria during the enrolment period.
If they agree to participate and sign the Patient Informed Consent form, you can perform data collection in the eCRF!
You just need to contact us through the EORP contact form. To participate or for more information:
Jolien Roos-Hesselink, Co-chairman of the registry, NLRoger Hall, Co-chairman of the registry, UKWilliam Parsonage, AUS Werner Budts, BEJulie de Backer, BEJasmin Grewal, CAAriane Marelli, CAGuillaume Jondeau, FRMark Johnson, UKCatherine Otto, USAKaren Sliwa, ZAAldo Maggioni, ITLuigi Tavazzi, IT
Our mission: To reduce the burden of cardiovascular disease.
© 2020 European Society of Cardiology. All rights reserved.