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Download the ROPAC General Presentation and promote ROPAC in your country.
The impact of pregnancy on women with heart disease or the impact of maternal disease on the outcome of pregnancy for the baby is not yet fully understood. Pregnant women may have a spectrum of structural heart disease including congenital heart disease, rheumatic heart disease, pulmonary hypertension, cardiomyopathy, aortic disease and coronary artery disease. The heterogeneous nature of this group means that the information we use currently to develop our management protocols is incomplete and fragmented. The information provided by this registry will enable us to improve the accuracy of advice to women both before and during pregnancy and to develop better management protocols. It may also allow randomized studies to be targeted at specific problems. Such a registry has to be large in order to collect information on a sufficient numbers of patients with the wide variety of possible situations which may occur.
Today more than 60 countries are participating in the registry, and we expect more to join!
If you wish to know more about this registry or to participate please contact us by clicking on the button below:
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If you are already registered as a participant in the EORP programme, you may connect to our secure website: http://www.eorp.org
ROPAC is conducted in collaboration with the ESC Working Group on Congenital Heart Disease, the ESC Working group on Heart Valve Disease and the Association for European Paediatric and Congenital Cardiology.
The Executive Committee of the registry is chaired by Professor Roger Hall (UK) and Professor Jolien Roos-Hesselink (NL) on behalf of the ESC and EORP.
Jolien Roos-Hesselink (Co-Chair)Roger Hall (Co-Chair)Luigi Tavazzi (Past-Chair EORP Oversight Committee)Aldo Pietro Maggioni, EORP Scientific Coordinator, ex-officio (non-voting)Mark Johnson, UKJorg Stein, ATGary Webb, USUri Elkayam, USAriane Marelli, CAUlf Thilen, SEWerner Budts, BEHarald Kaemerer, DEKaren Sliwa, ZAWilliam Anthony Parsonage, AU
View all ongoing ESC Registries
Our mission: To reduce the burden of cardiovascular disease.