Registry Of Pregnancy And Cardiac disease (ROPAC)

Learn about the EORP Registry Of Pregnancy And Cardiac disease (ROPAC) (a 'Special' registry)

Topic(s):

Pregnancy and Cardiovascular Disease

ROPAC registry publications

Date

Title

Date: 01/02/2020

Title: Pregnant Women With Uncorrected Congenital Heart Disease: Heart Failure and Mortality
Date: 14/12/2019

Title: Pregnancy outcomes in women with cardiovascular disease: evolving trends over 10 years in the ESC Registry Of Pregnancy And Cardiac disease (ROPAC)
Date: 12/03/2019

Title: Women with congenital heart disease in eastern developing countries: gaps to be bridged by female pharmacist in heart team
Date: 20/02/2018

Title: Results From the Registry of Pregnancy and Cardiac Disease
Date: 01/10/2017

Title: Incidence and predictors of obstetric and fetal complications in women with structural heart disease
Date: 14/09/2017

Title: Pregnancy in women with hypertrophic cardiomyopathy: data from the European Society of Cardiology initiated Registry of Pregnancy and Cardiac disease (ROPAC)
Date: 01/08/2017

Title: Influence of socioeconomic factors on pregnancy outcome in women with structural heart disease: data from ROPAC, an ESC registry
Date: 18/10/2016

Title: Risk of Pregnancy in Moderate and Severe Aortic Stenosis: From the Multinational ROPAC Registry
Date: 01/10/2016

Title: Ventricular tachyarrhythmia during pregnancy in women with heart disease: Data from the ROPAC, a registry from the European Society of Cardiology
Date: 07/07/2016

Title: Pulmonary hypertension and pregnancy outcomes: data from the Registry Of Pregnancy and Cardiac Disease (ROPAC ) of the European Society of Cardiology
Date: 22/03/2016

Title: Global cardiac risk assessment in the Registry Of Pregnancy And Cardiac disease: results of a registry from the European Society of Cardiology
Date: 01/08/2015

Title: Atrial Fibrillation or Flutter During Pregnancy in Patients With Structural Heart Disease: Data From the ROPAC (Registry on Pregnancy and Cardiac Disease)
Date: 22/06/2015

Title: Mechanical Heart Valves in Pregnancy: A Sticky Business
Date: 22/06/2015

Title: Pregnancy in Women With a Mechanical Heart Valve: Data of the European Society of Cardiology Registry of Pregnancy and Cardiac Disease (ROPAC)
Date: 04/03/2015

Title: Mode of delivery for pregnant women with heart disease
Date: 24/12/2014

Title: Is a planned caesarean section in women with cardiac disease beneficial?
Date: 15/11/2014

Title: Cardiac medication during pregnancy, data from the ROPAC
Date: 29/11/2013

Title: Progress: the ROPAC multinational registry advances our understanding of an important outcome in pregnant women with heart disease
Date: 29/11/2013

Title: Heart failure in pregnant women with cardiac disease: data from the ROPAC
Date: 09/10/2012

Title: The ROPAC registry: a multicentre collaboration on pregnancy outcomes in women with heart disease

Download the ROPAC General Presentation and promote ROPAC in your country.

Objectives and characteristics of the study

The impact of pregnancy on women with heart disease or the impact of maternal disease on the outcome of pregnancy for the baby is not yet fully understood. Pregnant women may have a spectrum of structural heart disease including congenital heart disease, rheumatic heart disease, pulmonary hypertension, cardiomyopathy, aortic disease and coronary artery disease. The heterogeneous nature of this group means that the information we use currently to develop our management protocols is incomplete and fragmented. The information provided by this registry will enable us to improve the accuracy of advice to women both before and during pregnancy and to develop better management protocols. It may also allow randomized studies to be targeted at specific problems. Such a registry has to be large in order to collect information on a sufficient numbers of patients with the wide variety of possible situations which may occur.

Objectives

Determine the variation over the participating countries of structural heart disease for pregnant patients in the participating countries: Assess the maternal and foetal mortality and morbidity during pregnany and 6 months after pregnancy:
- Type of heart disease (i.e. valvular, congenital, ischaemic, cardiomyopathy)
- Age during pregnancy
- Medication used before/during pregnancy
- Mode of delivery
Document the incidence of congenital heart disease in the babies born from women with congenital heart disease
Assess prospectively the changes in maternal cardiac function as a consequence of pregnancy using echocardiography
Assess use of medical resources utilisation (caesarean section, epidural anaesthesia) and its impact on outcome in different countries
Assess the results and complication rate of interventions performed during pregnancy
Test the value of the existing risk models on pregnancy outcome in patients with heart disease
Compare different types of anticoagulant therapy strategies used during pregnancy

Characteristics

Today more than 60 countries are participating in the registry, and we expect more to join!

If you wish to know more about this registry or to participate please contact us by clicking on the button below:

If you are already registered as a participant in the EORP programme, you may connect to our secure website: http://www.eorp.org

Study Organisation

ROPAC is conducted in collaboration with the ESC Working Group on Congenital Heart Disease, the ESC Working group on Heart Valve Disease and the Association for European Paediatric and Congenital Cardiology.

The Executive Committee of the registry is chaired by Professor Roger Hall (UK) and Professor Jolien Roos-Hesselink (NL) on behalf of the ESC and EORP.

Jolien Roos-Hesselink Roger Hall

Executive Committee

Jolien Roos-Hesselink (Co-Chair)
Roger Hall (Co-Chair)
Luigi Tavazzi (Past-Chair EORP Oversight Committee)
Aldo Pietro Maggioni, EORP Scientific Coordinator, ex-officio (non-voting)
Mark Johnson, UK
Jorg Stein, AT
Gary Webb, US
Uri Elkayam, US
Ariane Marelli, CA
Ulf Thilen, SE
Werner Budts, BE
Harald Kaemerer, DE
Karen Sliwa, ZA
William Anthony Parsonage, AU

View all ongoing ESC Registries

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