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Grown-Up Congenital Heart Disease (Management of)

ESC Clinical Practice Guidelines

Topics:

Congenital Heart Disease

Current versions available to download

Publication dateVersionsReferencesSize
2003Full TextEHJ 2003;24:1035-1084272 KB
 Pocket guidelines
 PdaDownload the PDA Version
 Slideset4 MB
 SimulatorAdult Congenital Heart Disease Survival Simulator104 KB

Authors

John Deanfield (Chairperson), Erik Thaulow, Carol Warnes, Gary Webb, Frantizek Kolbel, Andreas Hoffman, Keld Sorenson, Harald kaemmener, Ulf Thilen, Margreet Bink-Boelkens, Laurence Iserin, Luciano Daliento, Eric Silove, Andrew Redington, Pascal Vouhe

Endorsed by:

Table of contents: Full Text (ESC Clinical Practice Guidelines)

Introduction and background

Size and composition of the GUCH population

Organization of care

Transition from paediatric to adult care, Network of specialist centres with models of delivery, An overview of the current situation, The beginnings of a solution, Delivery of patient care, Management recommendations

Training of practitioners in grown-up congenital heart disease

Medical issues

  • Ventricular function
  • Arrhythmia and pacemakers
  • Cyanosis in the GUCH patient
  • Pulmonary vascular disease
  • Infective endocarditis
  • Imaging in adults with congenital cardiac disease
  • Interventional catheterization
  • Pregnancy and GUCH
  • Genetic counselling and contraception in GUCH
  • Comorbidity and syndromes
  • Emergencies – adults with congenital cardiac disease

Surgical issues

  • Cardiac surgery
  • Anaesthesia and post operative care
  • Non-cardiac surgery
  • Transplantation

Psychosocial issues

Intellectual development/education, Employment, Insurance, Physical activity/sport, Quality of life, Patient organizations

Specific lesions

Adult Congenital Heart Disease Survival Simulator

Previous versions

A complete list of ESC Clinical Practice Guidelines (current and previous versions) endorsed by ESC National Society Members is available here