Objectives and characteristics of the study
The impact of pregnancy on women with heart disease or the impact of maternal disease on the outcome of pregnancy for the baby is not yet fully understood. Pregnant women may have a spectrum of structural heart disease including congenital heart disease, rheumatic heart disease, pulmonary hypertension, cardiomyopathy, aortic disease and coronary artery disease. The heterogeneous nature of this group means that the information we use currently to develop our management protocols is incomplete and fragmented. The information provided by this registry will enable us to improve the accuracy of advice to women both before and during pregnancy and to develop better management protocols. It may also allow randomized studies to be targeted at specific problems. Such a registry has to be large in order to collect information on a sufficient numbers of patients with the wide variety of possible situations which may occur.
Determine the variation over the participating countries of structural heart disease for pregnant patients in the participating countries:Assess the maternal and foetal mortality and morbidity during pregnany and 6 months after pregnancy:
- Type of heart disease (i.e. valvular, congenital, ischaemic, cardiomyopathy
- Age during pregnancy
- Medication used before/during pregnancy
- Mode of delivery
Document the incidence of congenital heart disease in the babies born from women with congenital heart disease
Assess prospectively the changes in maternal cardiac function as a consequence of pregnancy using echocardiography
Assess use of medical resources utilisation (caesarean section, epidural anaesthesia) and its impact on outcome in different countries
Assess the results and complication rate of interventions performed during pregnancy
Test the value of the existing risk models on pregnancy outcome in patients with heart disease
Compare different types of anticoagulant therapy strategies used during pregnancy
Today more than 60 countries are participating in the registry, and we expect more to join!
If you wish to know more about this registry or to participate please contact us by clicking on the button below:
If you are already registered as a participant in the EORP programme, you may connect to our secure website: http://www.eorp.org
Each registry is conducted by an Executive Committee (scientific experts) and the whole programme is conducted by the Oversight Committee.
The Executive Committee of the registry is chaired by Professor Roger Hall (UK) and Professor Jolien Roos-Hesselink (NL) on behalf of the ESC and EORP.
Jolien Roos-Hesselink (Co-Chair)
Roger Hall (Co-Chair)
Luigi Tavazzi (Chair of EORP Oversight Committee)
Aldo Pietro Maggioni (European Scientific Coordinator)
Mark Johnson, UK
Jorg Stein, AT
Gary Webb, US
Uri Elkayam, US
Ariane Marelli, CA
Ulf Thilen, SE
Werner Budts, BE
Harald Kaemerer, DE
Karen Sliwa, ZA
William Anthony Parsonage, AU
Iris van Hagen, NL (Research fellow)