Europe needs reliable data on cardiovascular (CV) disease and the European Society of Cardiology (ESC) is the body which should provide such data. Surveys and Registries (S/R) are essential to assess CV epidemiology, diagnostic/therapeutic processes and adherence to Guidelines.
In 2009 the EURObservational Research Programme (EORP) was launched. The aim of this new programme, of Surveys & Registries, is to provide a better understanding of medical practice based on observational data collected with more robust methodological procedures.
|One-quarter of high risk patients denied anticoagulation after AF ablation |
Very good long-term results for AF ablation across Europe: The EORP Atrial Fibrillation Ablation Pilot Study reveals that 65% of patients were taking anticoagulants one year after ablation of AF. But up to 25% of patients at high risk of stroke (defined as a CHA2DS2-VASc score >1) were not taking any anticoagulant drug. And around half of patients with a low stroke risk (CHA2DS2-VASc score of 0) were still anticoagulated one year after the procedure.
The main features of the EURObservational Research Programme are:
- Use of appropriate methodological procedures
- Network of volunteer centres appointed by ESC constituent bodies
- Use on-line electronic Case Report Forms (CRF) allowing user friendly web based data entry
- Full involvement of the ESC National Societies and relevant ESC Constituent Bodies
The new programme includes:
Clinical Cardiology surveys/registries:General S/R to assess the management of diseases of major impact in terms of incidence. These surveys will provide epidemiological data and provide reports on the application of clinical practice guidelines recommendations (Heart Failure, Atrial Fibrillation General, CICD)
Sentinel S/R to assess the impact of interventional procedures and imaging techniques (Atrial Fibrillation Ablation, TransCatheter Valve Treatment)
Special S/R to assess epidemiology and management of rarer conditions as arising critical issues in terms of public health (severity of the disease, stringent clinical needs, costs) (Pregnancy and Cardiac disease, Cardiomyopathies)Prevention S/R to assess cardiovascular risk factors epidemiology and prevention measures (EUROASPIRE IV)
Ongoing and planned studies
Please contact us if you require more information concerning our activities
Results from completed EORP studies are published in the European Heart Journal as well as other major scientific reviews.
If you are already registered as a participant in the EORP programme,
you may connect to our secure website: http://www.eorp.org