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Registries & Databases

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Registries, Databases, Protocols and Surveys

Note: Registries, Databases and Surveys available in full text are in PDF format; Adobe Acrobat Reader is needed to read the files.

These lists, or systematic records of activities and actions, whether they be numerical, alphabetical, judgemental, estimates, analytical or precise measurements are of great importance to the scientific community. Several Working Groups of the ESC maintain survey results of this type for the use of the industry and healthcare professionals. Also, written documents describing all the important details of how a study is conducted are available here. Investigations including clinical trials, surveys, meta-analysis or final statistics are helpful elements for research.
For your research complements, see also the following :

European ST-T Database
Presented by Ing. Alessandro Taddei from the CNR Institute of Clinical Physiology (Pisa, IT) in collaboration with George Moody at MIT (Cambridge,MA -USA), October 2000. For more information, click here.
(presentation text).

Arrhythmogenic Right Ventricular Disease (ARVD)
Study Group jointly organised by the Working Group on Pericardial and Myocardial Diseases and the Working Group on Arrhythmias
Camerini F., Fontaine G. (chairmen), Blomstrom-Lundqvist C., Corrado D., Fontaliran, McKenna W., Nava A., Thiene G., Farre J., Fromer M., Jordaens L., Jung W., Touboul P., Wichter T.

Austrian Registry on Coronary Interventions
Contact Person: V. Muhlberger, Vienna, Austria
Presented during the First Registry Conference, June 26-27, 1997 at the European Heart House, France.

Database for Thoracic Surgery and Percutanous Interventions
Presented by J.G.P. Tijssen, The Netherlands, at the First Registry Conference, June 26-27, 1997 at the European Heart House, France.

Database on Cardiomyopathy
Presented by P. Elliot, London, United Kingdom, at the First Registry Conference, June 26-27, 1997 at the European Heart House, France.

Database on out of Hospital Sudden Death
Presented by S. Holmberg, Molndal, Sweden, at the First Registry Conference, June 26-27, 1997 at the European Heart House, France.

European Pacemaker Registry
Contact Person: H. Ector, Leuven, Belgium
Presented by L. Kappenberger, Lausanne, Switzerland, at the First Registry Conference, June 26-27, 1997 at the European Heart House, France.

European Registries of Cardiovascular Diseases and Patient Management
The European Heart Survey – Inventory of the care of cardiovascular diseases in Europe
M.L. Simoons - ESC
Powerpoint slide presentation taken from the XXIst Congress in Barcelona

European Registry for Implantable Defibrillators (EURID)
EURID is directed by a Policy Committee (co-chairmen: Günter Breithardt, Münster, D, and Hugo Ector, Leuven, B, as well as by an Executive Committee (chairman: A. Nathan, London, UK)

European Registry on Percutaneous Coronary Interventions
Contact Person: Meier B (chairman)
Presented by R. Maier-Rudolph, Bern, Switzerland at the First Registry Conference, June 26-27, 1997 at the European Heart House, France.

European ST-T Database
Presented by Ing. Alessandro Taddei from the CNR Institute of Clinical Physiology (IT) in collaboration with George Moody at MIT, at the Computers in Cardiology conference, Cambridge (UK), October 2000. For more information, click here.

Herzbericht - Cardiac Report (in German)
by Dr. Bruckenberger.

Interventional Cardiology in Europe 1993 (full text in PDF format)
B.J. Meyer, B. Meier, T. Bonzel, J. Fabian, G. Heyndrickx, M.-C. Morice, V. Muhlberger, F. Piscione, M. Rothman, W. Wijns, and M. van den Brand, for the Working Group on Coronary Circulation of the European Society of Cardiology
Eur Heart J 1996 ; 17 : 1318 - 1328

International Registry of the Implantable Defibrillators in Young Patients (Eurid-Junior)
Study Group of the Working Group on Arrhythmias
Peter J. Schwartz (chairman), Priori S.G., Block M., Camm A.J., Coumel P., Fromer M., Garson A. Jr., Gillette P.C., Silka M.J.

Multicenter European Radiofrequency (MERF)-Registry
Study Group of the Working Group on Arrhythmias
E. Rowland (chairman), Hindricks G., Aliot E., Borggrefe M., Brugada J., Cunningham D., Farre J., Gaita F., Asti I., Kuck K.H., Salerno J.

Protocols for selection of cardiac radionuclide studies for use as a data base of normal studies and typical patterns of diseases
Cost B2 Working Group II, in association with relevant working/task groups of the European Association of Nuclear Medicine and the ESC
Bourguignon M.H., Busemann Sokole E., Jones B., Van der Wall E.

PTCA Registry of German Community Hospitals (full text in PDF format)
A. Vogt, T. Bonzel, D. Harmjanz, E.-R. v. Leitner, C. Pfafferott, H.-J. Engel, W. Niederer, P.-R. Schster, H. G. Glunz and K.-L. Neuhaus for the Arbeitsgemeinschaft Leitender Kardiologischer Krankenhausarzte (ALKK) study group
Eur Heart J 1997 ; 18 : 1110 - 1114

Registry for Thoracic Surgery by EACTS
Presented by R.K. Wyse, London, United Kingdom, at the First Registry Conference, June 26-27, 1997 at the European Heart House, France.

Spanish Registry on Coronary Interventions
Contact Person: A. Iniguez-Romo, Madrid, Spain
Presented during the First Registry Conference, June 26-27, 1997 at the European Heart House, France.

Surgery and PTCA Registry
Contact Person: F. Unger, Salzburg, Austria
Presented during the First Registry Conference, June 26-27, 1997 at the European Heart House, France.

The European Registry for Implantable Cardioverter/Defibrillators (EURID)
Study Group of the ESC Working Groups on Arrhythmias and Cardiac Pacing.
Breithardt G., Ector H., Nathan A., Fromer M., Cunningham D., Andresen D., Aliot E., Brachmann J., Trappe H.-J.

UK Cardiac Surgical Register 1995/96
Contact: Dr Alan Bailey
Presented during the First Registry Conference, June 26-27, 1997 at the European Heart House, France.

Unexplained Cardiac Arrest Registry of Europe (UCARE)
Study Group of the ESC Working Group on Arrhythmias
Priori S.G. (chairman), Camm A.J., Hauer R.N.W., Klein H., Kuck K.H., Schwartz P.J., Touboul P., Wellens H.J.J.

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