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Heartfailurematters.org: Patient website on heart failure soon available in Arabic 

Practical information for patients, families and caregivers. Soon available in Arabic.

 

Date: 23 Aug 2012

Heartfailurematters.org provides practical information on lifestyle, drugs, devices and diagnosis for heart failure patients and also for everybody involved in the life of a patient: general practitioners, nurses, families and other caregivers. The data is presented in a straightforward format that patients and their families can easily understand and enjoy.  Anna the avatar guides people around the website which is already available in 6 languages: English, French, German, Spanish, Russian and Dutch. Soon available in Arabic.


Work on the Arabic version will be announced at the ESC Congress in Munich. A version in Arabic was seen by the Board of the Heart Failure Association of the ESC as a logical step in the progression of the site. Professor Kenneth Dickstein says:

“It is gratifying for the HFA that heartfailurematters.org has been so well received globally. We do believe that this initiative, which focuses on patient education, goes to the heart of the ESC and HFA missions. It represents a useful, user-friendly tool for all health care professionals responsible for patient care. Making this website available to the large Arabic speaking world is an important step and the final Arabic site will incorporate all the recent graphic improvements and content updates. We are very excited about this effort and hope for broad support in promoting its use within the Arabic speaking community.”

Working with the Saudi Heart Association and other local representatives working group, the Heartfailurematters.org team will provide the same information to Arabic patients with the correct alterations for conforming to cultural differences.

What is heartfailurematters.org? Everything you need to know about heart failure.

Essential heart failure information is laid out in the optimal way to help visitors find and learn the information quickly and easily.  One click will introduce you to Nick, Francois or Theo who explain what living with heart failure is like, what adjustments they have made and how important the support of friends and family is. Other patient videos include planning for the future, coping with medicine and how much exercise they can manage. As Francois the French lorry driver declares, even with heart failure “la vie est belle!”

Useful features allow patients to print medicine charts or appointment records which help keep track of their treatment. Captivating animations –aimed at users of all ages- explain vividly how the heart works and what happens when someone suffers from heart failure.

Lifestyle recommendations

3.6 million patients are diagnosed with heart failure in Europe every year, making it more common in Europe than cancer. Heartfailurematters.org points out Warning Signs to watch out for, as well as simple adjustments to lifestyle that can help patients suffering from heart failure to live longer and enjoy life more.  Tips vary from ways to maintaining a healthy weight (including suggestions for recipes) to the right amount of exercise to keep fit without overloading the heart. Caregivers can not only learn about what their loved one goes through, but also benefit from a section of the site that is dedicated to them, covering such topics as support networks and financial issues.

Multilingual multicultural

Of the six languages so far, each version is coordinated with a local group, usually from national heart failure societies. In each country, a group of cardiologists and nurses work together to make sure the clinical and cultural content continues to be valid for their patients. Any request for translation into a new language is studied carefully in order to fulfil our aim to reach the maximum number of patients with heart failure worldwide and help all patients live happier and healthier lives.

Extras:

  • Heart failure touches people of all nations and all cultures and www.heartfailurematters.org is a common element that everybody can use together.

  • A successful Facebook page has been created where useful news and tips on heart failure are posted and people interested in heart failure can connect and share their experiences. facebook.com/heartfailurematters