Study Group on Peripartum Cardiomyopathy

Web links for information:

• Hatter Cardiovascular Research Institute, Cape Town, South Africa
• Hannover Medical School, Germany: Peripartum Cardiomyopathy Group
• Do you know a patient with PPCM and a family history of cardiomyopathy? And are you interested in advice or collaboration on genetic analysis/research? Please contact Karin van Spaendonck-Zwarts: k.y.spaendonck@medgen.umcg.nl 

Information Flyer to download

We feel that such a group can promote ongoing interest and research into this disease of unknown etiology and facilitate lessons to be learned relevant to other conditions. Spread the word and create a network by putting up this Information Flyer.

Registry

The European Society of Cardiology has agreed to include data collection on peripartum cardiomyopathy in its Heart Failure registry. This project should start later this year. For details, please contact us

Coordinators

Prof. K. Sliwa-Hahnle FESC (Cape Town, South Africa) email

Prof. B. Pieske FESC (Graz, AT)

Study Group members

Aims

• We aim to establish a platform where current knowledge on peripartum cardiomyopathy based on experimental and clinical studies is summarized and regularly up-dated, for example in form of consensus papers.
• We will raise awareness of this uncommon but devastating problem by promoting sessions at international and national congresses and publishing articles in national and international journals.
• We plan to coordinate the collection and analysis of data internationally for better understanding of the condition.
• We will meet regularly to discuss and update management strategies for peripartum cardiomyopathy, with a focus on novel diagnostic and therapeutic approaches.
• We will provide information and contact addresses on our webpage for physicians and patients concerned about peripartum cardiomyopathy.

Contact us