Committee on Heart Failure Surveys & Registries

Coordinator

The value of heart failure registries - report on the session from HF2011

Committee

Objectives

• Determine the list of registries/surveys of interest to be implemented across ESC countries.This includes acute and chronic heart failure, in and out hospital surveys, heart failure with depressed and preserved ejection fraction, surveys in specific subsets of patients.
• Make recommendations to the HFA Board on:
          a. Priorities.
          b. Timelines.
          c. Specific survey scientific committees.
• Evaluate the feasibility and scientific content of survey proposals. When necessary, propose amendments to the survey coordinator(s).
• Ensure scientific surveillance of the ongoing surveys. This includes recruitment status, analysis plan, publications and communication plans. Special attention will be paid to a comprehensive exploitation of existing databases and to a balanced representation of investigators in authorship.
• Develop programs aimed to improve quality of care through specific tools implemented in the structure of the existing databases of surveys & registries
• Maintain an overview of clinical trials and observational studies performed in the field of HF
• Keep the HFA Board informed of the studies in progress on a quarterly basis.

Priorities

• Following the success of the Heart Failure Pilot Registry, the Committee will now work on the design, conduction and analysis of the Long-term Phase of the ESC-HF Registry.
• Publish on the HFA Web pages a periodical overview of the clinical trials and observational studies performed in the field of HF
• Try to involve as much as possible local participants of surveys and registries in  the analyses and presentation/publications of ancillary analyses of the existing database of the ESC-HF Pilot experience.