It has been distributed and presented to National Heart Failure Societies and Working Groups worldwide at the Endorsement Meeting that took place in Athens on 16 May 2014.
42 national heart failure working groups have endorsed the White Paper so far:
- Armenian Heart Failure WG of Cardiologists Association
- Austrian Heart Failure WG of Society of Cardiology
- Belgian Working Group on Heart Failure
- Belorussian HF WG of Scientific Society of Cardiologists
- British Society for Heart Failure
- Bulgarian Society of Cardiology
- Cardiology Society of Serbia
- Croatian Cardiac Society
- Cyprus Society of Cardiology
- Czech Society of Cardiology
- Danish Society of Cardiology
- Egyptian Society of Cardiology
- Estonian Society of Cardiology
- Finnish Cardiac Society
- French Society of Cardiology
- German Cardiac Society
- Heart Failure Society of Bosnia Herzegovina
- Heart Failure Society of America
- Hungarian Society of Cardiology
- Icelandic Society of Cardiology
- Irish Cardiac Society
- HF WG of the Israel Heart Society
- HF WG of the Italian Society of Cardiology
- Japanese HF Society
- Latvian Society of Cardiology
- Lebanese Society of Cardiology
- HF WG of Lithuanian Society of Cardiology
- Macedonian Heart Failure Association
- Moldavian Society of Cardiology
- Moroccan Society of Cardiology
- Netherlands Society of Cardiology
- Norwegian Society of Cardiology
- Polish Cardiac Society
- WG on HF of the Portuguese Society of Cardiology
- Romanian Society of Cardiology
- Russian Heart Failure Society
- Slovak Society of Cardiology
- Slovenian Society of Cardiology
- Spanish Heart Failure WG
- Swedish Society of Cardiology
- Swiss Society of Cardiology
- WG of HF of Turkish Society of Cardiology
- Ukrainian Association of Cardiology
- WG for HF of Hellenic Society of Cardiology
Why a Global Heart Failure Awareness Programme is needed
The complexity of the heart failure syndrome represents a major obstacle to adequate identification and diagnosis of untreated patients. But this also thwarts understanding of heart failure among politicians and the general public.
Heart failure awareness among healthcare professionals and non-medics is poor across the globe, in contrast to the recognition of cancer which is related to the global campaign oncologists have been conducting for some time.
Heart failure is a preventable disease.
Recent advances in therapy result in much better outcomes for patients which also make heart failure a treatable disease.
Heart failure treatment is seen differently according to geographical location.
There is clear evidence that the prevalence of heart failure will rise substantially over the next 20-30 years thus increasing the economic burden of prevention and treatment on society.
Specific Project Objectives
- Identify gaps in the education of heart failure in different regions of the world and in the different countries.
- Develop an international consensus paper to educate and help people to make decisions. This paper will inform policy makers, targeting action for implementation at national level.
- Position heart failure as a serious health threat at international, EU and member state level.
- Raise awareness of heart failure and available management options amongst key international, EU and national officials, health care providers and the general public.
- Defend early diagnosis, treatment availability and better quality of life for all patients living with heart failure.
- Present the most effective ways to prevent Heart failure and undertake all the measures to introduce them into everyday practice.
Methodology – Summary of Methods and Means
The unique combination of complementary partners at national, European and world levels is the most effective way to reach the objectives of this project. This partnership can be expressed as a synergy of public heart failure awareness and strategic and political expertise.
The wide scope of the project led the World Heart Failure Alliance to prioritize its actions. It was agreed by the partners that the first two targets to reach are policy makers and patient with heart failure risk.
The first step of this ambitious programme took place in December 2013:
The publication of the 'Acute Heart Failure Report - Improving Care for Patients with Acute Heart Failure'. The recommendations contained in this report have been endorsed and adopted by the Heart Failure Association of the European Society of Cardiology as part of their Global Heart Failure Awareness Programme.
Thereon, the programme will be broken down into 2 phases:
Phase 1: 2013-2014
Phase 1 is divided into several steps:
- Write the white paper/call for action on heart failure
- Endorsement and Dissemination of the white paper on heart failure
- Define a diagnostic test on heart failure: Heart Function Test (HFT)
- Prepare Phase 2 of the project
Endorsement meeting: 16 May 2014 - Programme and slides
- 15:30 Welcome and introduction - Prof. Stefan D. Anker
- 15:35 About the Global Heart Failure Awareness Programme - Prof. P. Ponikowski
- 15: 40 Improving care for patients with acute heart failure: before during and after hospitalization - Prof. M.R. Cowie
© 2014 Oxford PharmaGenesis™
Made available with permission from Oxford PharmaGenesis™ Ltd. Based on Cowie et al., Improving care for patients with acute heart failure: before, during and after hospitalization, 2014, Oxford, UK. Available from: http://www.oxfordhealthpolicyforum.org/AHFreport
- 15:50 Heart failure: preventing disease and death worldwide - Prof. G. Filippatos
- 16:00 Regional perspectives - Dr. K.F. AlHabib - Prof. T.L. Force - Prof. H. Krum - Dr. V. Rastogi - Prof. L.E. Rohde - Prof. B.B. Siswanto - Prof. K. Sliwa
- 16:40 Future plans - Prof. P. Ponikowski
- 16:45 Discussion
Phase 2: 2014-2018
Phase 2 actions will be adjusted according to the result of Phase 1.
- Develop Heart Failure Awareness Campaign
- Write a White Book which will highlight current and future epidemiological background and the associated economic burden and characterise the ways heart failure is managed in different regions of the world
- Make studies on heart failure epidemiology and registries focused on quality of care improvement
- Develop an educational website tool for patients in many languages
The Heart Failure Association of the ESC (HFA) designed the Global Heart Failure Awareness Programme. It is to be lead by the HFA (with its network of 40 National Heart Failure Societies), with the support of high-level representatives of heart failure groups in the European Society of Cardiology, the Heart Failure Society of America, the Heart Failure Society of South Africa, the Japanese Heart Failure Society and groups in Brazil, Saudi Arabia, China, Indonesia, Australia and New Zealand.
If you are an organisation interested in joining the Global Heart Failure Awareness Programme, please contact us.
The Global Heart Failure Awareness Programme is supported by Novartis Pharma AG and SERVIER in the form of an unrestricted educational grant.