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EHS publications on Adult Congenital Heart Disease

Check all results from the ACHD survey

Congenital Heart Disease in Children and Adults


Results are published in the European Heart Journal

  • The spectrum of adult congenital heart disease in Europe: morbidity and mortality in a 5 year follow-up period.  Peter Engelfriet, Jan Tijssen, harald Kaemmerer, Michael A. Gatzoulis, Eric Boersma, Erwin Oechslin, Erik Thaulow, Jana Popelova, Philip Moons, Folkert Meijboom, Luciano Daliento, Rafael Hirsch, Valérie Laforest, Ulf Thilen, and BarbaraMulder . The Euro Heart Survey on adult congenital heart disease . Eur Heart J 2005;26,2325-2333.
  • Adherence to guidelines in the clinical care for adults with congenital heart disease: The Euro Heart Survey on Adult Congenital Heart Disease. Peter Engelfriet, Jan Tijssen, harald Kaemmerer, Michael A. Gatzoulis, Eric Boersma, Erwin Oechslin, Erik Thaulow, Jana Popelova, Philip Moons, Folkert Meijboom, Luciano Daliento, Rafael Hirsch, Valérie Laforest, Ulf Thilen, and Barbara Mulder.Eur Heart J 2006;27:737-45.
  • de Groot NM, Schalij MJ . Euro Heart Survey on adult congenital heart disease: concern for the complexity of care. Eur Heart J 2006;27:1268-9.
  • Moons P, Engelfriet P, Kaemmerer H, Meijboom FJ, Oechslin E, Mulder BJ, Expert Committee of Euro Heart Survey on Adult Congenital Heart Disease . Delivery of care for adult patients with congenital heart disease in Europe: results from the Euro Heart Survey . Eur Heart J 2006;27:1324-30.

Other Journals

  •  Moons P, Scholte op Reimer WJM, De Geest S, Fridlund B, Heikkilä J, Jaarsma T, Martensson J, Smith K, Stewart S, Strömberg A, Thompson DR .  Undertaking Nursing Interventions Throughout Europe (UNITE) Research Group. Nurse specialists in Adult Congenital Heart Disease: the current status in Europe. Eur J Cardiovasc Nurs. 2006;5:60-7.
  •  Engelfriet PM, Boersma E, Tijssen JG, Bouma BJ, Mulder BJ. Beyond the root: Dilatation of the distal aorta in the marfan syndrome.  Heart 2006 Feb 17 [ Epub ahead of print ]
  • Hoffmann A, Engelfriet P, Mulder B. Radiation exposure during follow-up of adults with congenital heart disease. Int J Cardiol. 2006 Sep 21; [Epub ahead of print].
  • Engelfriet PM, Duffels MGJ, Möller T, Boersma E, Tijssen JGP, Thaulow E, Gatzoulis MA, Mulder BJM.  Pulmonary arterial hypertension in adults born with a heart septal defect. Accepted for publication in Heart
  • Engelfriet PM, Drenthen W, Pieper PG, Tijssen JGP, Yap SC, Boersma E, Mulder BJM: Smoking and its effects on mortality in adults with congenital heart disease. Int J Cardiol 127: 93-97, 2008.
  • Engelfriet P, Meijboom FJ, Boersma E, Tijssen JGP, Mulder BJM: Repaired and open atrial septal defects type II in adulthood: an epidemiological study of a large European cohort. Int J Cardiol 126: 379-385, 2008.